'Glass bone' boy gets a surprise

KUALA LANGAT - Three-year-old Muhammad Syafiq Aminuddin is suffering from a rare bone disease and needs help for his medical treatment.

His parents face a great challenge caring for him daily as he was born with osteogenesis imperfecta, a condition that makes his bones incredibly fragile, as if they were made of glass.

His father Aminuddin Abd Manap, 46, who works as an assistant caterer, makes sure that the bills are paid, while his wife Noaili Che Abdullah, 39, takes care of little Syafiq and four other children aged between six and 12 at home.

"Syafiq has to lie down in his cot most of the time due to his condition.

"I bathe him twice a day and those are the times I get to be really close with him. I hope he gets better as he grows up," Noaili said at her home at Jalan Teluk Pulai, Kampung Bandar in Banting, here.

The family had a pleasant surprise when the Prime Minister's wife and Permata patron Datin Seri Rosmah Mansor paid them a visit yesterday.

She presented them with a cash donation and special milk powder meant for Syafiq's diet. Rosmah also spent time chatting with Aminuddin and Noaili.

Aminuddin expressed the family's gratitude for the kind gesture.

"We need at least RM1,000 (S$345) a month for Syafiq's medical care and necessities," he added.

During a separate event, Rosmah attended a Permata Prihatin social and community programme with hundreds of community members at the Kampung Bandar town here.

She gave gifts to the community members.